ALS Support Journey After Diagnosis: Ellen’s Alires-Trujillo Story

Navigating Life with ALS: Ellen’s Personal Experience

I was diagnosed with ALS at the Mayo Clinic in October of 2020. I was later given the name the ALS United Rocky Mountain, formerly ALS Association Rocky Mountain Chapter, to contact for support and services. I made the telephone call and received a return call quickly from Suzanne who spoke with me and provided me with a packet of resources. From that day forward, the staff have been attentive and caring in each of the phases of my illness. They are so knowledgeable about ALS and have guided me in this horrible journey that has no roadmap other than suffering and unknown decline on a daily basis. Because, of the ALS United Rocky Mountain, their caring team understands my fears.

This is not an easy place to be in life but the counseling I receive has made it tolerable. The equipment they have provided me is so very important to me and for my caretakers. Equipment to help me do daily tasks is essential for what remains of my quality of life. We encourage people to contribute to support ALS United Rocky Mountain so that they may continue to do God’s work for those in need.

– Ellen Alires-Trujillo

The ALS United Rocky Mountain Care Coordinator’s expertise in symptom management helps families prepare for changing care needs. Beyond physical resources, the counseling services address the emotional weight of an ALS journey for both patients and caregivers. Regular support group connections create communities where experiences are shared and coping strategies developed. Ellen emphasizes how this holistic approach makes the unpredictable nature of ALS more manageable, providing stability during difficult transitions. The ongoing relationship with care coordinators ensures no one faces ALS alone.

ALS United Rocky Mountain’s nonprofit services demonstrate how targeted support impacts daily living with ALS. Your donations directly fund these vital resources that maintain dignity and comfort throughout disease progression. By contributing, you empower more families to access equipment, counseling, and specialized care that transform their ALS journey. Join our mission to ensure every patient receives compassionate support after diagnosis.