News & Stories

Separating the Who from the What – The Ekins Family

March 27, 2026 Comments Off on Separating the Who from the What – The Ekins Family

Separating the Who from the What A Caregiver Reflection Many years before my wife Debra was diagnosed with ALS, or showed any symptoms, we attended a wedding reception. Among the guests was a woman in a power chair. I remember thinking she seemed like a shell of her former self. She could only grunt, tried…

From Backyard Cornhole to Lasting Impact: The Legacy of Dennis Lubeley

March 13, 2026 Comments Off on From Backyard Cornhole to Lasting Impact: The Legacy of Dennis Lubeley

Dennis was a husband, dad, Opa, brother, uncle, brother-in-law, friend, and a 35-year UPS employee. He also had ALS. He was a family man who loved his wife of 34 years and 4 daughters. He enjoyed camping, breweries, appetizers, hot rods, gun shows, photography, technology, and gadgets! It was his love of technology and electronics…

Hit the Slopes for a Cause: Join Us for SKI ALS Utah

March 12, 2026 Comments Off on Hit the Slopes for a Cause: Join Us for SKI ALS Utah

Get ready for an unforgettable winter adventure. SKI ALS Utah is more than a day on the mountain; it’s a powerful opportunity to combine the excitement of skiing and snowboarding with the mission to support individuals and families living with ALS. Join us on March, 21, 2026 in Park City, Utah! Set against the stunning…

The 7 Stages of Bulbar ALS: A Comprehensive Overview

March 4, 2026 Comments Off on The 7 Stages of Bulbar ALS: A Comprehensive Overview

About ALS United Rocky Mountain At ALS United Rocky Mountain, we are committed to defeating ALS together. We provide essential support and resources for those affected by ALS, engage in groundbreaking research, and advocate for policy changes to enhance the lives of the ALS community. Join us in our mission to bring hope and help…

Youth Events for ALS at Joe’s Camp 2026

February 23, 2026 Comments Off on Youth Events for ALS at Joe’s Camp 2026

Registration is Open for Joe’s Camp 2026, May 1-3. At ALS United Rocky Mountain, we are proud to share a meaningful connection with Joe’s Camp, a program that provides youth impacted by ALS with resources, connection, and a much-needed outlet for joy and understanding. ALS affects the entire family, including children who often carry emotions…

A Legacy of Love: Kipp & Michelle Sheets Honoring Mark Sheets

February 12, 2026 Comments Off on A Legacy of Love: Kipp & Michelle Sheets Honoring Mark Sheets

“What a great honor to be a part of the Legacy Circle.” For Kipp and Michelle Sheets, supporting ALS United Rocky Mountain is not just a charitable commitment; it is a deeply personal mission rooted in family, community, and 25 years of unwavering dedication. Their journey began in early 2000 when Kipp’s younger brother, Mark…

Joel and Karen Goldhirsh Legacy

February 9, 2026 Comments Off on Joel and Karen Goldhirsh Legacy

ALS is a devastating disease for both the people living with it and their loved ones. Joel was diagnosed in 2019. As the disease progressed, it became harder for my husband, Joel, to do things on his own. As a wife and caregiver, I became stressed, anxious, and depressed. The ALS United Rocky Mountains’ support…

Standing Together for ALS: Federal Funding Wins in FY26

February 6, 2026 Comments Off on Standing Together for ALS: Federal Funding Wins in FY26

At ALS United Rocky Mountain, we believe in the power of advocacy, and this year, that power delivered real progress. Thanks to sustained action by advocates across the country and strong bipartisan leadership in Congress, the FY26 federal funding package includes meaningful new investments in ALS research and public health programs. These resources strengthen the…

Seated Exercises for ALS: Upper

January 9, 2026 Comments Off on Seated Exercises for ALS: Upper

About ALS United Rocky Mountain At ALS United Rocky Mountain, we are committed to defeating ALS together. We provide essential support and resources for those affected by ALS, engage in groundbreaking research, and advocate for policy changes to enhance the lives of the ALS community. Join us in our mission to bring hope and help…

What Are Usually the First Signs of Motor Neurone Disease? Identifying Early Symptoms

January 2, 2026 Comments Off on What Are Usually the First Signs of Motor Neurone Disease? Identifying Early Symptoms

About ALS United Rocky Mountain At ALS United Rocky Mountain, we are committed to defeating ALS together. We provide essential support and resources for those affected by ALS, engage in groundbreaking research, and advocate for policy changes to enhance the lives of the ALS community. Join us in our mission to bring hope and help…