May is ALS Awareness Month, a time dedicated to honoring the strength of those living with ALS, amplifying their voices, and rallying support for critical research, care, and advocacy. ALS (Amyotrophic Lateral Sclerosis) is a progressive and currently incurable disease that affects the nerve cells responsible for controlling voluntary muscles. But beyond the science are stories—deeply human stories of resilience, love, and unwavering hope. Today, we’re honored to share one of those stories. Here’s David’s journey.
“My ALS Journey began October 2022
When I was first diagnosed with ALS, I was fortunate to keep working for two years before the symptoms forced me to retire. Since then, my wife has become my full-time caregiver, and with the help of equipment — and an accessible van — we’ve been able to maintain some independence and continue living life beyond the walls of our home.
The support we’ve received from family, friends, and the ALS community has been incredible. Their generosity has allowed us to get the tools we need to keep moving forward, and it has given me hope — hope to experience things like attending sporting events and concerts that once felt impossible.
Being diagnosed with ALS was a life-changing moment. My first thoughts were about how much time I would have left to spend with my family and to watch my grandkids grow up. I don’t know exactly what the future holds, but every day I am grateful. I’m blessed for the memories I’ve made and the ones still to come.
I was diagnosed with a rare form of respiratory onset ALS in October 2022, and though it has made life more difficult, the love and support we’ve had from the community have made all the difference. Every day, I’m reminded how important it is to live fully and love deeply.
If I could give advice to anyone facing ALS, it would be this: Keep fighting. Keep hoping. Appreciate those who help you. And never lose sight of how precious each day really is.
I’m thankful for every moment, and I will continue to fight with hope in my heart.“
David’s story is a powerful reminder of what truly matters—family, gratitude, and the ability to find joy even in the face of life’s greatest challenges. His strength and perspective embody the spirit of ALS Awareness Month: to uplift, to educate, and to inspire action. As we reflect on his words, let’s also recommit ourselves to supporting the ALS community through compassion, advocacy, and generosity. Together, we can bring hope to families like David’s and help create a future where no one has to face ALS alone.