Living Fully with ALS: Mark Ryan’s Story of Resilience, Humor, and Hope

At ALS United Rocky Mountain, we are honored to share the stories of individuals in our community who choose to face ALS with strength, openness, and resilience. This month, we’re grateful to highlight the journey of Mark Ryan. Mark’s story begins like so many others, with subtle signs, a long road to diagnosis, and a life forever changed. But what stands out most is how Mark and his wife Diane have chosen to live: with courage, humor, and a commitment to making every moment count.

This past April, I was diagnosed with ALS.

Looking back, the signs started a few years ago when my wife noticed I was slapping my left foot while we walked or hiked. Like many husbands, I insisted nothing was wrong, even though I secretly sensed something was off. I eventually mentioned it to my doctor, but the initial response was that it wasn’t a concern. Life moved on.

At my wife’s encouragement, I saw a neurologist (after some delays), and then a neurosurgeon. Both thought it might be spinal issues, and I even underwent surgery to address a suspected problem in my thoracic spine. But after more falls and increasing weakness, another neurologist quickly recognized the true cause: ALS. Two more opinions confirmed it.

Since then, I’ve been receiving amazing care from the University of Colorado Health Sciences Center in Aurora. I’ve also had help from Mary King at ALS United Rocky Mountain, who guided me through getting vital mobility equipment. And none of this would be possible without Diane—my wife, caregiver, and absolute rock. Her support is truly next-level.

These days, I use a walker for short distances and an electric wheelchair for longer outings. Diane and I have chosen to be open with friends and family—we lean on calm, a little humor, and a whole lot of support to get through each day.

Despite the challenges, we’re still making the most of life. Since my diagnosis, we’ve traveled internationally, taken a road trip to see our grandson play baseball, and we’re now planning a visit to Yellowstone, a bucket list stop before our next overseas adventure.

I’m committed to staying active with physical therapy and sheer determination. And to anyone else facing ALS: hang in there. Someone once told me, “If you lighten up, your life may brighten up.” That’s been my guiding light—and maybe it can be yours too.

— Mark Ryan

Mark’s story is a powerful reminder that ALS may change your path, but it doesn’t define your journey. With the support of his care team, our ALS United Rocky Mountain community, and the unwavering love of his wife, Mark continues to live life fully and meaningfully. We’re grateful to Mark and Diane for sharing their experience and for reminding us that even in the toughest moments, there is light, laughter, and community.

— ALS United Rocky Mountain