In 2013, I lost my husband, Larry, to ALS. From diagnosis to goodbye, we had only three years—but those years were filled with love, struggle, and the kind of strength you don’t know you have until you need it.
I’ve been volunteering with ALS United Rocky Mountain ever since. For 14 years, I’ve led a walk team in Larry’s honor, The Larvinators, and we’ve grown into the largest fundraising team in Colorado with the support of my Co-Captain, Sherise Chew, and Southern Glazer’s Wine & Spirits. Every dollar we raise, every step we take, is a step toward hope, research, and support for families like mine.
ALS United Rocky Mountain means more to me than words can express. Without their support, I wouldn’t have been able to keep Larry at home or care for him properly. They provided equipment, guidance, and compassion, things that made an impossible situation just a little more bearable.
Unfortunately, I cannot attend the Walk ALS Denver this year, where I usually walk. But I wasn’t about to break my streak. Instead, I volunteered at the Colorado Springs Walk ALS because this cause, this community, and this fight are part of who I am. I walk for Larry. I walk for every family facing ALS. And, I walk because love doesn’t end, it just finds new ways to keep going. I have pledged to walk until I can no longer, or there’s a cure. Whichever comes first, I pray every day, it’s the latter.
— Heather Lyon
At ALS United Rocky Mountain, we are deeply grateful for champions like Heather Lyon and Sherise Chew, whose dedication keeps the spirit of their loved ones alive while helping countless others. Stories like theirs remind us that this fight is personal and that real progress is made when we come together as a community fueled by love, memory, and determination. Their commitment is a testament to the power of resilience and the impact one voice, one team, and one walk can have.
— ALS United Rocky Mountain
You can honor Larry’s legacy and help families living with ALS by joining us in this fight.
You can register for a Walk in your Area, Join Here.
Donate to Heather’s team, The Larvinators, today — every dollar brings us closer to a cure and ensures that no family walks this journey alone. Donate Here.