Literature for Coping and Understanding
You are not alone.
Literature for Coping and Understanding
The list of literature provided below offers invaluable support for individuals navigating the challenges of ALS, whether you're dealing with the diagnosis or becoming a caregiver. These resources offer practical advice, emotional comfort, and a deeper understanding of the experiences that others have faced. Through a combination of expert insights, personal stories, and coping strategies, these books serve as a source of strength and empowerment. They can help you gain clarity, foster resilience, and find hope, while also offering tools to manage both the mental and emotional aspects of the journey.
Bedside Witness - Stories of Hope, Healing and Humanity
By: Kay M. Adams
Dr. Karen Wyatt shares heartwarming and poignant stories from her time as a hospice physician, exploring themes of compassion, resilience, and the power of human connection in the face of terminal illness.
Caregiving for the GENIUS
By: Jane W. Barton
This guide offers practical strategies and valuable resources for caregivers. It blends humor and expertise to help caregivers navigate the challenges of caregiving while preserving self-care and emotional health.
Scratch My Itch: A Caregiver's Honest, Humorous And Healing Stories About The Horrors Of ALS
By: Cyndy Mamalian
This memoir chronicles Jennifer Buck's caregiving journey for her husband with ALS. It's a raw, humorous, and inspiring account of facing life's darkest moments with love and courage.
Hard Choices for Loving People: CPR, Feeding Tubes, Palliative Care, Comfort Measures, and the Patient with a Serious Illness 6th Ed.
By: Hank Dunn
This compassionate book helps families navigate complex medical decisions about end-of-life care, offering guidance and understanding during emotionally challenging times.
Being Mortal: Medicine and What Matters in the End
By: Atul Gawande
Dr. Atul Gawande examines how medicine often prioritizes extending life over enhancing its quality. A profound exploration of aging, illness, and end-of-life care.
Life Impossible: Living with ALS: Finding Peace and Wisdom Within a Fragile Existence
By: Steve Gleason
This reflective book shares the author's journey of finding peace, resilience, and meaning while living with ALS, offering inspiration for patients and their families.
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis
By: Dr. Sammy Winemaker and Dr. Hsien Seow
Practical and empowering, this book provides a roadmap for navigating life after a life-changing diagnosis, emphasizing the importance of preparation and advocacy.
Tuesdays with Morrie
By: Mitch Albom
A touching memoir recounting the author's weekly visits with his former professor, Morrie Schwartz, who shares life lessons and insights while living with ALS.
Until I Say Good-Bye: My Year of Living with Joy
By: Susan Spencer-Wendel with Bret Witter
Diagnosed with ALS, Susan Spencer-Wendel shares her final year in a memoir filled with hope, humor, and a deep appreciation for life's moments.
The Bright Hour: A Memoir of Living and Dying
By: Nina Riggs
A poetic and heartfelt memoir about the author's journey through terminal cancer, offering reflections on life, love, and finding beauty even in hardship.
Every Note Played
By: Lisa Genova
This novel by neuroscientist Lisa Genova tells the story of a world-renowned pianist diagnosed with ALS and his estranged ex-wife who becomes his reluctant caregiver. It's a powerful exploration of relationships and resilience..